Daily Blog

I am going to recommend a couple of websites to go to:
One is the But you don't look sick site, In the Social Security boards
is very good information on why people do and don't get approved, and
information on what to include in your application. We help each
other out in the application processes, and support each other in the
process.
http://www.butyoudontlooksick.com/boards/viewforum.php?f=32&sid=7f31c1070175e442\
40877bf82fb3c9ed
For basic information on the SSDI and SSI process, go directly to the
source, the Social Security Website at:
http://www.ssa.gov/d&s1.htm
And for information on if you particular disease or ailment is
covered, look up the Blue Book. The blue book lists not only the
types of issues that you do not have to prove can be disabling,but
also to what degree you have to be impaired to qualify. Don't worry
if your particular illness is not on the list, as you need to prove to
the SSA that your particular illness has effected your daily life to
the point of no being about to work.
http://www.ssa.gov/disability/professionals/bluebook/index.htm
Finally, it is very possible to get approved on the first try. But
you have to do your homework, and give the SSA all the information
they need to make the determination. Or as I have told several people
appling for SSDI, SSA can not read your mind or feel your pain. You
need to put it into words for them. That's where the two most
important words on the SSDI paperwork are "SEE ATTACHED", and then use
your words to explain how your disease has effected you. What could
you do before and what can you do now.
I'll go back to lurking now, if you have any questions, email me or
post them here.
Cynthia

Welcome Lisa, I am Pat and live in RI, had lap August 11 and am
quite happy. Nice pictures
Pat in RI

Hi all, I had my bypass in March of 03, was 301 and now am 150
pounds! Feel great, you can see my pics in your gallery, i just
added the BEFORE with my family and our after, this past holiday
picture! WHat a difference eh? Went from a size 26 to 10 and loving
every minute of it!!! This changed my life, and i wanted to
see if i could help out anyone going through problems or issues like
i have along the way. I did have plastic surgey may of 04, what an
ordeal, but i survived!! Not sure how this chat thing works, so im
going to just jump in and try it, hope i do it right :) hugs, lisa
oh and my nicname bingoqueen is becase i work online for a bingo
site LOL :)

This isn't true for all of us. I had virtually no
pain off pain meds from day 2. I thought I would have
to sleep in my recliner, but was able to lay in bed
carefully of course. I didn't have that pain in the
left side and I didn't have trouble wiping either.
Good luck,
Shannon

Mine did that for a while. I don't know what it's
caused from, but it does eventually go away.

Go ahead and burp. What's wrong with that?

This is the first year that I haven't felt like my New Years
Resolution is a waste of time. Year after year I made a resolution
that I would lose a ton of weight and you know how that goes. My
good intentions never lasted long. Well this year feels different
because of my surgery. I feel like I will really accomplish
something this year! I made a brand new goal on fitday to lose
another 15 pounds by Easter. That's only 5 pounds a month according
to fitday.com so I should be able to do that. I am trying to set
shorter and smaller goals for myself then I did before that ways they
are more realistic and I can get there quicker:) Are you guys making
resolutions this year?
Pat

Hi Tracy, Im sure your burning sensation is because of your swelling. Have you
tried taking ebsom salt baths? Ive heard they help!! Bill
Bill Middleton <middleton.bill@...

I too have restless legs. I notice it especially when I first get
into bed. I have always rubbed my feet together when going to sleep.
But now it's my legs. I rub my legs back and forth for about 15
minutes before going to sleep. I think it's because I'm so tired from
having PA.
My husband says I even rub my legs during my sleep. I haven't have
had Restless Leg Syndrome diagnosed yet. I'm on so much medicine
already. I hate to add one more to the bunch. I take clonazepam to
help me sleep.
My legs swell at times, due to retaining fluid. I take a blood
pressure medicine with a diuretic to keep the swelling down.
I hope things get better for you soon.
Rhonda

Four hundred mg per day Don seems to work for me but no less than that.
rider rabbit <riderrabbit@...

Hello Mary, i am just repling to your post that you replied to Angelia, anyway i
am down 50 lbs since surgery i had it Oct 6th, My dr told me i would probally
lose slower than some of his other pacients, in the last month i have only lost
5 lbs but i know i need to watch eating better and get exersizing more , but i
was wondering what part of MN you live in my hubby is from Brooklyn Center. We
may be taking a trip that way this summer. So anyway i really like the people
that way the times we visited so i thought i would message you:)
take care ,
Patty S
Have a great day!
Patty Schroeder

I was actually diagnosed by my dermatoligist! And he suggested I try Embrel, so
I am now on my 3rd shot. Keeping my fingers crossed. Good luck!! Bill

I am going through the process also. I would talk to your rheumatologist
and see if s/he is going to support the claim with evidence such as blood
work and what your prognosis is. For me the doctor had no problem writing
the records for me as it was well documented.
Best of luck!!!
Barb

Try running warm/hot water over your wrists. It warms the blood.
Cold water over the wrists will break a fever.
Pat in RI

Hi I have been doing loads of research on various medications and found
a possible one or two which i may be able to tolerate. The rheumy just
wants to push the DMARDs And Biologicals. I have had two and had bad
reactions to both. I have had swollenglands and a sore throat for weeks
now and doc wont give me anti biotics.
I did have some relief from my PA psymtoms for a a couple of weeks
after having steroid injections. but now all the infalamation is
starting to creep up on me again and my knee which had to be drained is
swelling up again.
I am in a spin as i can't tolerate the drugs that can slow the PA and
the NSAIDs and pain killers have a damping effect on my pain as far as
making me sleepy.
I really feel that my options are fading away after only just being
diagnosed.
I have tried to get rid of the throat and swollen glands by
nutrition,garlic, fish, vegetables, fruit but the throat and neck
soreness is still there and my eyes have become really sore too,
(probably due to looking at the computer screen too much.
Can anyone suggest a plan of action cos the stress isnt helping.
Jenny

Hi, I just recently joined. I have PA and severe inflammatory bowel
disease. I just weaned off high doses of Prednisone. I also take
Humira weekly. I take Percocet 10mg for the pain, but only a couple of
days a week. My problem ( or one of them!) is that it no longer works.
Yest. I had to take two at once, just to get some relief. I will not
continue to do this as I know it is very bad for me. Tomm. I am going
to go to my Rheumy and I wanted to ask others what pain med works for
them. He has no problem writing enough for me take take up to 3 a day,
but I don't want them if they aren't going to work. Are they all the
same in how they work? Does any one go for pain management and does it
help? I will ask Rheumy, but wondered what is working for others?
Thanks!
Tracey

I was wondering if anyone else has experienced pain in their upper
part of the calf with very mild swelling and petechiae (small red dots
that don't go away when you press them). I called my general doc
today to get seen and they had me go to the ER to make sure I didn't
have a clot. I didn't but the ER doc didn't have a good explanation
as to why I am having the pain. THey said it could be a muscle cramp
or small blood vessels that burst. However, that just doesn't make
sense to me. I have had this happen around 2-3 times now in the exact
same spot. Last week, while I was travelling for work and sitting a
lot I noticed it. (Sitting seems to make it worse, propping the leg
up helps.) The very first time, I don't think I had swelling or the
petechiae (or at least I didn't notice it). I was originally thinking
it was my arthritis but its really not near the knee joint. So after
last week, the swelling and pain went away and then recurred
yesterday. I haven't had any trauma or anything unusual happen. I
take Humira, tramadol, mobic, birth control pills. Any ideas?

Deb,
I have been taking mtx for 5+ years and I take Tylenol Cold when I need it. I
have never had a problem
with it. I have also used musinex, the expectorant this winter with no ill
effects. Good luck.
Janet in Ca

Has anyone heard of this company or tried their video? According to the reviews
(if they can be trusted), it might be well worth the $20.
http://www.chicometrics.com/index.html

Hi Deb, I had exactly the same reaction to the MTX actually. Even
though i was in a lot of pain i did not have a cold. But the same week
as taking the MTX i began to feel like i had a head cold my throat was
swollen and sore as well and when i took the second dose my pain got
worse too.
You need to be clear that it is the MTX and not a cold that you were
already incubating. If so then tell your rheumy and he will probably
suggest you get anti biotics.
I am fairly new to this site and still have lots of questions about
what medication i can take as i tried the Avara and it gave me terrible
fevers and vision disturbances.
perhaps with the support of this site and our newness we can help one
another to manage our PA treatment.
Jenny

Melissa,
Was so good to hear from you and to hear how great your doing. Keep up the
good work and stay strong. Hope this year brings you many new and wonderful
things.
Hugs,
Laurette
4/23/04 open rny
309/290/211/160
St. Vincent Charity
Cleveland, Ohio

Hi all,
Hope this finds you all in great health and feeling happy as the ne wyear
begins. Life has taken over and not left me much time to tstop and smell the
roses or read the posts. BUt my thoughts have been with you alll.. If you
remember i hadmy bypass Sept 20th, 2004 at a weight of 242.lbs.. which seems
like forever ago. Now 3 months out i feel wonderful already and have more energy
than i have had in years. I am weighing in right now at 185. which i ahve also
ahvent seen in YEARS...thats a whopping 57.6lb loss..and am now wearing size 14
pants... and can shop in normal stores again it si amazing. I jstu cant believe
it. I actually thoguth somehow this wouldnt work for me. I have been blessed
with no complications at all it has all gone so smoothly. WIth only minor
problems learnign to eat slower and chew better adn stay away from anythign at
all that is bread, or use butter.. wow that sure killed the first tiem i had
soem of that. I jstu recently took my kids to a theme park with Kim
and her family and it was so liberating to walk and not be tired and to fit in
all the rides again! felt liek i was 15 yeras old agian~ BUt ont he home front
this has done jstu what the physcologist todl me it woudl do to my marriage. He
told me that it woudl make a good marraig even better and a bad one worse. Well
mine is on the down slide.. and that is ok i will survive and aso much more
happy and confident person that it is amazing. I knwo that i will be jsut fine
no matter what happens.!
Melisa
open 9/20/04
242.6/185/125(goal)
"Life may not be the party we hoped for, but while we are here we might as well
dance!"
Misa

Hi, I am new to the group as well, but here is how I was diagnosed:
I have been 100% well my entire life. No one ion my family suffers from
anything even remotely like an autoimmune disease or PsA or even
psoriasis. I didn't even know what it was. In January '06 I developed what
I now know to be psoriatic patches behind my ears. At the time I thought
it was just really, really dry skin from the weird training facility (a
concrete, mostly underground vault used for military training and
meetings.) I had just spent 2 weeks at for my job. I struggled with this
spreading rapidly and my dermatologist gave me Olux, 40 some-odd
cortisone shots to the scalp, this medicated oil I have forgotten the
name of, and creams. Nothing helped much except Olux.
Then, the first week of June I started feeling stiff. Like my body was
mummifying. I thought it was after-effects from the car wreck I had
literally just been in (I was hit by a deer in my Illinois hometown and
both my daughter and I were completely unhurt to the extent that I
continued driving home from Illinois to NC - 11 hours and all was fine).
A week or so later, tho, I started feeling stiff. My internal medicine
Dr. and I tried to figure out what this was for the rest of the summer
and he must have taken a zillion vials of blood --- Rocky Mountain Spotted
Fever, Lyme Disease, MS, Lupus, everything you can think of. But he
came up with nothing. By the middle of July I was bedridden (this only 6
weeks after I had first felt stiffening). I couldn't walk or move my
hands, my fingers were swollen and turning sort of blue-ish.
I went to my dermatologist for more Olux and because I had developed
psoriatic patches on my elbows and thighs as well as my scalp. He noticed
how I couldn't walk, but when I had last seen him 4 months prior I
walked fine. I explained what had been going on and he asked if I'd
looked into PsA. I went to a rheumy (the first one I could get an
appointment with) and he confirmed PsA. He put me on Mtx, which made me
nauseous, and he then put me on Humira 2x/month. His diagnosis was
basically: You have psoriasis, you have swelled joints, you DON'T have
these other things according to the blood tests, ergo you must have
psoriatic arthritis.
I must say, United Health did not give us a bit of trouble approving the
Humira, nor did they give a bit of trouble approving the change in dose
to 1x per week a few months later when it became apparent the 2x a month
wasn't working. Our health insurance is thru my husband's work, and it
is a self insurance thru a very large bank, so perhaps that's why? In
any event United Health has been great, as has Caremark. The Humira? Not
so much. The shots really hurt. I don't know why they cant develop
something that doesn't hurt so badly going in and doesn't leave a bruise
as big as a softball for 2 weeks. I grew up in a farm town, and am a
pretty tough girl, not usually whiny, but I do dread that Humira.
So, I struggled thru last year and due to a huge (and I do mean huge)
amount of stress on my family and specifically me the symptoms have
flared dramatically to the extent where now I am basically covered all
over everywhere with huge psoriasis, my joints are so very stiff I'm
fundamentally mummy-fied all over again, and my toes and a big lesser
extent my fingers are re-swelled to sausage proportions, and now my
forearm muscles are very, very stiff (I have no idea why). And I'm
pretty much completely exhausted all the time, napping 3 hrs a day, 2x a
day plus a full nights sleep. I hate how much time I spend in bed,
actually. Its very unproductive.
So, my new rheumatologist is putting me on Remicade, which I am very
apprehensive about, but am hopeful it will work. Anyone with Remicade
advice, feel free to reply!
I hope this has been helpful.
C

Hi everyone, I have only had my 3rd shot of ENBREL, havent noticed a
real difference yet but, they say give it 4 to 6 shots before a big
change! Im sure hopeing for one. Good luck to you all and if some one
wants to talk my email address is middleton.bill@..., we're all
in this together so lets keep the faith. Hey it can only get better!!!

I have been diagnosed with PA for over two years now. I was wondering
if anybody else out there has restless legs. My legs are so swollen
and i have been up everynite for a week until 6 am everynite. It is
so frustrating. Everyone else in the house is snoring..lol Its not
like it is just rls, cause it is like electrical shocks in my feet and
legs and it wont let me laydown. I am better sitting up on side of
bed until about 6am i am so tired, ifeel like i can ignore it and sleep
My calf muscles are real tight too and i cant stand long periods at
atime cuz they burn. Is this from the inflammation? Thanks for
listening, can anybody give me suggestions.

Hey Dora,
I have hit two plateau's since surgery and protein did help get them
behind me. I have to think maybe its so our bodies can catch up
with the weightloss. Counting down my day's to move...unfortunately
they keep adding on instead of dropping off.
Hugs, Linda in AL.

Hi GK,
That's great news for you. Would you tell us how much in milligrams per day
you are taking, given the divided doses you have worked out for yourself?
Thank you!
Don

Tony, when you smoke your intestines get inflamed. When you quit
the inflamation goes away and your intestines absorb more food most
people who quit usually gain about 15-20 pounds. After a few months
your body regulates itself and it will be easy to lose the weight.
This is what happens in a non-bypass person, with our shorter
intestines I am sure it is the same. If you are real nervous try
the Protein Train and that should get you back on track.
Pat in RI

I have been sitting at the same weight for about 2 weeks now. I know it will
pass but it sure is aggravating. I have just stepped up the exercise to combat
it. I guess I will resort to the protein train if it doesn't feel like budging.
Hope all are well in this new year!!!
Dora
Lap RNY 9-20-04
Vanderbilt Hospital
Nashville, TN
447-375-165
-Nobody can make you feel inferior without your permission.-
Eleanor Roosevelt

I just got taken out of work because I could no longer do the job. I
have 4 weeks of pay coming and hope to get signed up for SSD. Any
suggestions about applying?? I have letters from my employees about
the pain I was in and the fact that they had to pick up the slack on
the things I could not do. I'm going to the drugstore to get print
out of the meds I have been taking and am putting together a list of
the dr's i see and their addys. anything else that might be of
help? I also have a written job description.
"shirley_s_2002" <shirley_s_2002@...

Hi Everyone. Sorry if this isn't a proper intro right now but I just
have some specific questions about the MTX for now.
I started the MTX on Friday, today I have a horrible head cold. Are
there any cold medications that interact with this. I can't call the
pharmacy as they are closed for the holiday.
Also I've read online that it takes 3-12 weeks for the MTX for me to
start seeing any improvement in my joint pain. Please tell me this
isn't true........
Thank you.................deb

Keri, yes you should get to a doctor to have your blood done....As for the
losing....I am 20 months out and as of about Oct was still losing...My doctor
told me to add a little bit of sugar/carbs back into my diet....and it sounds
like you keep very very busy with your children so you are burning lots of
calories....This is just what I was told by my doctor to increase my protien and
then add a small amount of carbs and sugar back in...another question for you is
how tall are you??? I am 5'2 and a very small boned person so 110-115 is what is
recommended......I finally did stop losing and all I have left is loose
skin....I have had people and dont get me wrong when I say this say I looked
sick or anerxic or I had Cancer and or Aids.....but I have others who say I look
fine.....too me it sounds like your a very busy person and maybe your not
getting enough rest...that can make you look pale....are you taking all your
vitiams still? Ok sorry not much help and im rambling on....
Kim Graby
Open 5-5-03
243-110
keri warren <mmsmmmy2@...
I am wanting to ask a couple of questions. First of all Jan 12 will be my one
year anniversary. I have lost a total of 116.4 lbs and about 110 inches and I am
still losing. That is one of my questions, I am eating more and losing more. My
mother says that I am looking bad. Of course I asked what looked so bad and she
said my skin is pail and I just look bad. Will my body eventually stop losing
when it gets where it needs to be? If not how do I stop myself from losing? I
like where I am at now and I wouldn't mind losing a little more. I am at 148 lbs
and I have not been that small since I was 12 years old. My thing is that I am
eating and eating several times a day and I keep losing. I don't think I look
bad but you know other people can see some things you can not see. I feel great
and my goal was 150 lbs and I am past that and very happy. I really did not
think I would get under 160 lbs but I did. I think the other reason I continue
to lose is because I recently
remarried and between the both of us we have 3 kids(his 2 and my one, 2 girls
and a boy ages 5,4,and 2) so of course I am doing more and busier than I have
ever been. I am constintle doing something always up and down and back and forth
if you know what I mean. Anyway I hope to hear from some of you soon. Also, my
surgeon retired and I no longer can go and see him so I have not had any blood
work done since surgery one year ago. Should I just go to my primary Dr and get
them to do all the blood work and see what my levels are showing?
Keri--- Memphis, TN
KERI
RNY WITH GALLBLADDER REMOVAL
AND HERNIA REPAIR
01/12/04
DR PHILLIP ALSTON, MEMPHIS, TN
264/202/?

Hey Keri,
I would definitely go and have my doctor do a blood test. My
surgeon only does them at 6 mos. out and I was worried I wasn't
getting my vitamin's etc...in so I asked for one to be done. It put
my mind at ease plus they noted I had some depression I was
denying. You've done so well with you weightloss and since I am
still kind of new (since 9/7), I have to admit my family noted
changes in me also some saying I was pale or that I was bony in some
area's (still trying to locate them area's too...LOL) but they are
also used to seeing us filled out and bloated looking. Maybe the
changes are not as bad but getting them used to seeing you as you
loose weight. I loose skin is also kind of scary as it looks like
your not so well. My poor Mom freaked but after I explained more
she was okay with it. I am going to try some body wraps soon to see
if it helps. As far as loosing too much, my surgeon told me our
bodies know when to stop and sometimes will loose more then regain
to a healthy weight. Now if your loosing too much I'd also ask my
regular Dr. to check that too. Good luck and keep us up to date on
how you are doing.
Hugs, Linda in AL.

Oh Patty that is wonderful to hear! I am almost 4 mos out and
excited about my changes too! I haven't gone out for clothing yet
as I was they type who saved as I grew...LOL!!! I do have lots of
clothing I am going to sell to make money for my new future
purchases. I was wearing 24's prior to surgery and was given an 18
at Christmas which fit but alittle loose! Yippee for us all!!!
Hugs, Linda in AL.

Hi Tammy. I also was scared to death, but it turned out to not be that bad. I
am on Enbrel. They has sureclick self injectors, where you don't even see the
needle. It takes 10 seconds and thats it. I was doing it on my thighs and the
back of my arms (my husband would do), but I have found that my stomach, sitting
down, is the best, as I have lots of fat there and I can hardly feel it. Having
said all that, I have to go off Enbrel and will be trying Humira, as the Enbrel
has stopped helping. It helped for about 4 months and now I am all swelled back
up etc. I am waiting for my insurance company to ok the humira and them I will
start it. It looks like a bigger needle, but I don't think it is. It is the
same way, you never see the actual needle. The beauty of that one is that its
only every other week instead of every week.
Good luck to you and if you can, have someone else do it the first couple
times
Heather
Ontario

Hey Pat,
I was shocked and I hope its true cause the yellow star popped up
beside my name in chat last night. I'll have to find out how to fix
the problems...anyone have any ideas since we don't hear from Di? I
agree too, I miss looking at the pic's...and someday I'll learn how
to post some too!!! I am excited about my changes!
Hugs, Linda in AL.

Kathy: I just discovered 8 months ago that I had PA and I was 69 at the time -
much older than you but in pretty good shape for my age. I have had a problem
with anti-inflammatory meds too and now cannot take them because I developed
ulcerative colitis a few months after the PA was diagnosed. Don't worry,
though; there are great meds out there that can help, particularly the biologics
(Remidade is likely the one your cousin is on - I use Enbrel). This group will
really be helpful with the practical, day to day stuff but you need to go on
line yourself and do some research. There is a lot out there and - in
particular - the national association that works of psoriasis related issues has
great stuff. Sorry I can't remember their exact name at the moment but you'll
recognize it when you see it. You owe it to yourself to be a well-informed
patient and will have a step up on me because you know pretty much what your
disease is right now and will be
able to come up with a list of questions for your first visit. I went in cold,
only knowing that something was causing a systemic kind of inflammation in my
body - had never even heard of PA when I was suddenly told I had it and my
doctor wanted to put me on Enbrel. Didn't know what that was, either, and all
she said was "it has a 3% risk of causing lymphoma"; but all the drugs have
problems and I think this one is best for you. She also worked with my
insurance company to go thru the approval process and make sure they would cover
it.
Joanna Hoelscher
630-833-7361

Pat,
I went in and found two idled who didn't answer me either. I think
if we set up a time convenient for both coast's we can have some
great conversations. I'll get on anytime with you all if hubby
permits...LOL!!! I am in central standard time zone and can
understand the time difference since I just spent the holiday's in
CA. Just let me know if you ever want to chat.
Hugs, Linda in AL.

Way to go Patty.. I bet you feel great......
Big Hugs
Kim Graby
Patty Schroeder <thumper2252@...
Hello family,
in 2 days i will be 3 months out. I just went to walmart to get some mew release
movies, well i decided to look at clothes and before surgery i was wearing 20-22
Just my size stretchy jeans since surgery i have been able to wear 18-20's today
i bought a size 16 THEY FIT!!! next time i go down to regular sizes not the plus
sizes YEA YEA YEA!!! just had to share
Take care to all having or recovering from surgery. You are all in my prayers,
along with all of our troops where ever they are helping.
Patty S
Have a great day!
Patty Schroeder

Hello Everyone,
I just wanted to share some new-to-me information with you. There is
an organization out there that can help with medication costs. It
only covers certain diseases and one of them is PA! They are called
the Healthwell Foundation and their website is
www.healthwellfoundation.org
I hope this will be useful to someone.
Thanks
Eileen G

Joanna its no big deal about the shots, Ive been doing them for years
due to diabetes so Im used to them. Dont worry after a few you'll be a
pro!!! :)
"Bill" <middleton.bill@...

Kathy, it took me several months(10) before I got a correct
diagnosis! Im now on Embrel and Ive just taken my 3rd shot. I'm
hopeing it helps as I have trouble sleeping also. People dont
understand what this feels like! Good luck, wish you the best of luck.
"Bill" <middleton.bill@...

I am wanting to ask a couple of questions. First of all Jan 12 will be my one
year anniversary. I have lost a total of 116.4 lbs and about 110 inches and I
am still losing. That is one of my questions, I am eating more and losing more.
My mother says that I am looking bad. Of course I asked what looked so bad and
she said my skin is pail and I just look bad. Will my body eventually stop
losing when it gets where it needs to be? If not how do I stop myself from
losing? I like where I am at now and I wouldn't mind losing a little more. I
am at 148 lbs and I have not been that small since I was 12 years old. My thing
is that I am eating and eating several times a day and I keep losing. I don't
think I look bad but you know other people can see some things you can not see.
I feel great and my goal was 150 lbs and I am past that and very happy. I
really did not think I would get under 160 lbs but I did. I think the other
reason I continue to lose is because I recently
remarried and between the both of us we have 3 kids(his 2 and my one, 2 girls
and a boy ages 5,4,and 2) so of course I am doing more and busier than I have
ever been. I am constintle doing something always up and down and back and
forth if you know what I mean. Anyway I hope to hear from some of you soon.
Also, my surgeon retired and I no longer can go and see him so I have not had
any blood work done since surgery one year ago. Should I just go to my primary
Dr and get them to do all the blood work and see what my levels are showing?
Keri--- Memphis, TN
KERI
RNY WITH GALLBLADDER REMOVAL
AND HERNIA REPAIR
01/12/04
DR PHILLIP ALSTON, MEMPHIS, TN
264/202/?

Hello family,
in 2 days i will be 3 months out. I just went to walmart to get some mew release
movies, well i decided to look at clothes and before surgery i was wearing 20-22
Just my size stretchy jeans since surgery i have been able to wear 18-20's today
i bought a size 16 THEY FIT!!! next time i go down to regular sizes not the plus
sizes YEA YEA YEA!!! just had to share
Take care to all having or recovering from surgery. You are all in my prayers,
along with all of our troops where ever they are helping.
Patty S
Have a great day!
Patty Schroeder

Hi,
I am new to the list.......my Dr. called me on Friday nite to tell
me he is referring me to a specialist. My hands started swelling
about a month ago, so he ordered blood work and hand x-rays. He told
me the blood work came out fine, but the hand x-rays showed psoriatic
arthritis. I have a cousin who has this really bad and I know he
takes some kind of iv infusions for it. My grandmother also very bad
psoriasis but I don't think she had the arthritis part.
I'm 53 and quite worried about this since in the past I've had
allergies to anti-inflam. meds. Aspirin does not seem to bother me
though. I've noticed it's been harder and harder lately to climb the
stairs, open water bottles, etc. At night, shortly after I fall
asleep my hands wake me up from pain.
I was sent to a foot dr last year who told me I had degenerative
joint disease in my great toe and needed surgery. I also have had
problems with one of my eyes getting red and tearing a lot. This has
been going on for over 10 years. I don't think I have psoriatis,
that I have noticed anyway, but I do have very, very dry skin on my
hands. I have had some kind of skin rash pop up from time to time,
but they have never told me what it is.
Any help you can give me will be appreciated. If I have a normal sed
rate, can I still have this. The dr. told me it may take a month to
get info the specialist as he is very busy. He is trying to get me
in sooner though.
Thanks so much! Kathy

Joanna
I will be going on HUMIRA. I am scared to death to think of that. I don't know
if I can give my self shots!! So my insurance will only pay 75% of it and the
next option is ENBREL. What do you know about these drugs?
Thanks to all
Tammy Wilson

Hi Tony,
Congrats on your accomplishments. I know stopping smoking can cause weight
gain in non WLS people. It might be that we have to work that much harder to
keep the weight off. Are you getting in enough protein? Enough exercise? I
know they may sound like stupid questions for someone out as far as you but I
know with me I might need a reminder now and then. Wishing you lots of luck.
Hugs,
Laurette
4/23/04 open rny
309/290/211/160
St. Vincent Charity
Cleveland, Ohio

thank you very much
--rider
To: PsoriaticArthritis@...: rahaee07@...
Re: Turmeric Capsules?/Bonnie
If you Google for curcumin you will find many research references.I wish you the
very best of health,Peace soudi

Well the holidays have passed! I quit smoking in Aug 2004!!! I had by
bypass surgery in March 2000!! I lost 138 lbs!!! So what is the
problem?????
I have been gaining weight since I quit smoking!! At least 20 lbs!!
Im scared sounds stupid but I feel out of control!!!
Tony D
Rochester NY

Thanks everyone,
I've gotten a brief reprieve, as there was a scheduling snafu. So now
I'm scheduled for Wednesday. I appreciate all the info. I certainly
hope I fall into the "no big deal" category, as this will be my last
biopsy if I don't.
I'm a bit anxious and nervous, but not freaking out. In fact I'm
fairly calm, after all it is will be whatever it will.
I can't change that.
Stay well,
David

Hello Melody, I had this happen ten days post-op and it was bright red blood, it
turned out to be internal hemorroids. If the blood is black you need to go
immediatley to the hospital because that is a sign of a more serious problem.
bright red has to do w/ the lower intestine and black would be around the
surgery area. Good Luck
Mary Miller <rellimyram@...
but if you're doctor isn't wanting to help you, I think you need to find one who
will! Blood in your stool is NEVER normal regardless of having had this surgery!
You need help NOW! INSIST ON IT!
rellimyram open rny 12/3/04
Melody <mnm0604@...
Hi guyes,
I hope that everyone had a joyous holiday.
I have a question, Over the holiday weekend I didn't eat much and
whatever I did just seemed to go down wrong, and today I woke up and
used the restroom and had quite a bit of blood in my stool. ( I know
that is probably not what most wanted to read.. ) But I dont know
what to do. I come to you guyes for advice because my doc is 2 hours
away and his office dont seem to want to deal with me anymore. I
wrote about that previosly. When I have gas it hurts really bad and
now I have this. Has anyone heard of this happening or has it happend
to anyone else? Please please help someone.. Thanks
Melody Open RNY
4-21-04
288-177-130
Austintown, Oh

Hi I have just been reading these posts for about two years because
I have had Psoriatic Arthritis for years and have been taking
turmeric for two years and for me I know it works, two in morn and
two at bed time. without it I would not be able to operate my dozer
my fingers/knuckles would just drive me crazy with pain. I am not
saying it's a cure all just gives me more time to work before the
fingers start aching and limits swelling. thank you all for great
info I have read in here. GK

Yes, I get cold. I never truly shivered until I had this surgery. I
guess all that extra weight gives you more warmth. I would not trade
the shivers for that weight for anything. I two look for sweaters
more now then I did when I was heavy. At least now sweaters look
good on me. Sorry I havent been to your chat groups but I always
work nights, so unfortunately by the time I get home the chat is
over. I wish you all the best on your surgery's, and tell you to be
strong. It is so easy to become a emotional rollercoaster. It is
also very difficult to adjust to certain reactions that poeple will
give you. Especially when you have been heavy all your life, and no
one knew you any other way. It is hard to explain, but all of you
will go through it, or already going through it. Is there anyone
that can relate to what I am saying. Regarding the surgery technique
used on me. I have five little incisions that have faded around my
waist line in front. I can't remember what they called the method of
surgery, but it did heal up real nicely. Good luck to all, and God
Bless

If you Google for curcumin you will find many research references.
I wish you the very best of health,
Peace soudi

No, how did you get to be moderator? and please see if you can fix
the link to Photos. I want to see Kim's new pictures. Oh yeah,
congratulations on your new position! (LOL) I am glad, now we don't
have to start another group!
Pat in RI

Lynn,
I have gotten cold sores my whole life, usually only once or twice a
year. I started methotrexate about 6 months ago and ever since them
have had 3 of them. They never occur inside my mouth, only around
the lips and I even had one under my nose. I also noticed after
starting the MTX it takes longer for them to heal. Just make sure
you are taking your folic acid. That is supposed to help. Good luck!
Megan

plz tell me how i tried tonight but didn't see a soul...........what time
area is this in?im in calif.............thx PAT

I have been taking MTX (10mg) once a week for about 8 weeks. I haven't
had too many side effects really. Extreme fatigue the day after is the
main thing. But today I noticed a reddish, bruise-like raised area on
the outside edge of my lip. Kind of where you would have a cold sore.
I know that you can have mouth sores, but assumed they would be inside
my mouth. Does anyone out there have any experience with anything like
I have described? The MTX dose I am on is very low, but has helped my
hands and I can close my fingers and make a fist which is a big
improvement. Thanks for any information any of you may have.
Lynn

Has anyone noticed insomnia with MTX? I take my weekly dose and two
days later I have insomnia and am up all night. I switched the day I
take the dose and it was still 2 days after.

I was bounced out of the chat line and an unfinished chat with a nice person
named
Linda. Linda, if you read this please send me your email as I also lost that
when I
got booted. With all the chatty people on this list, how come hardly anyone
shows
up for the weekly chat?
Bob

Hey Everyone,
I wanted to let you all know that I was in chat tonight and enjoyed
a conversation with a few. Hopefully we can get something started
cause we can go there anytime and do this not just on Monday
evenings. Let me know what you all think and maybe we can have a
family reunion there sometime. Oh also, I found out I am a
moderator now and need to see what all I can do to help us out with
all this spamming. Anyone else been granted that honor?
Hugs, Linda in AL.

I hope you get to feeling better Randi.
I'm going to be starting Humira here myself in a couple of weeks, once I bet
this sinus infection. I was worried about going on it, but I feel a little
better knowing that several of you on this list are on it as well.
Rachel

I have to lose 14lbs for surgery and since 10/14, I've lost a total of 25 (so
far). I've been following the diet guidelines given to me by the nutritionist
and my feet have been pounding the pavement.
Lynn

Hi Julie,
I have gotten my TumericForce (from NewChapter) from The Vitamin Shoppe
because their prices seem to be better than most I've seen, and I wouldn't be
surprised if there is one near you in Santa Cruz.
I think 30 capsules there is about $12-$13; maybe $22 for 60. I don't know
what dosage would be recommended, given the aim of trying to reduce PA's
inflammation, but if you are stuck that way, write back and I could try to
cobble together a suggestion based upon some resources I know.
Good luck Julie, and please write to the website once you have tried tumeric
out - many of us would REALLY like to know your experience. Also, going the
capsule route I think would require some patience in terms of assessing benefit.
Don

Thats a good reason... any suggestions on how to take 20lbs off in a good amount
of time so I can get my surgery scheduled?
Love Debbie

Hey Julie,
I remember the same feeling's minus the bowel cleansing...bless my
surgeon for sparing me...LOL!!! I was so calm the morning of
surgery my husband thought I was drugged. But I made my peace with
God and prepared for my new life. You are certainly in our thoughts
and prayers.
Hugs, Linda in AL.

That is exactly why. The less fat around the liver, the easier it is for the
surgeon. They have to lift your liver up on little support levels and there is
a chance they could bend...

Theresa
Oh boy can I relate on this one. I don't get any skin reaction, the only PA rash
I have is little white patches on my elbows. I do however get pain in every
joint in my body. Lord I hate those days. I try to avoid what stress I can and
get plenty of sleep. It is not always easy when you have a stressful job and
work 40 hours a week.
Nancy

Good luck and be strong~
Lynn

Hello Everyone,
I just started on Humira, and it seems to be working. I had my first
injection on Wednesday, but was dealing with the side effects from the MTX,
so I wasn't feeling too well. It seems to take me two days to recover from
the MTX. I am on 20mg once a week. The doctor has me lowering the dosage
to 15mg per week and taking the Humira every other week. I have to say that
I wasn't too hopeful because the MTX did nothing to slow the PA as it has
now migrated to my left ankle. However, today I feel a lot better. I am
hoping that I can at least get out in front of the PA because I am too young
to retire. Thankfully, I signed up for additional long term disability
through my work, so if I do have to retire early, I will have something.
Take care,
Randi in AZ

Hi everyone. I am just about eight hours from surgery. I feel
strangely calm with the periods of panic running to the bathroom from
the bowel cleansing. Just wanted to ask everyone to keep me in their
prayers tomorrow and the next few days. I will post when I get
home. Thanks for all the good information I have gotten on this site
so far.

Yes, almost always. Any kind of stress - physical stress like an
illness or emotional stress like family problems. Anything that makes
your body feel threatened tends to kick our immune systems up a notch.
regards,
sherry z

Pat
is that why the dr wants me to lose 20lbs? cause of fat on the liver?
Love Debbie B
ps the dr says as soon as I lose the 20lbs he will schedule the surgery

Hi Fran and other members, I have been on arava for about three to four
year and found out two years ago i had nauropathy while testing for carpel
tunnel and was told by neuro surgeon & rheumy it was caused by diabeties which i
have had for 20 years, now i read this and it is getting worse no seems to take
notice . Ihave a hot problem for a while and my g.p. said some women get hot
flashes for the rest of there life. My husband begged him to cool my blood down
and he did nothing . Because we live in the tropics it is still hot but i am in
air conditioning 24 hours a day so thanks for your story i will look into it.
Take care . Old Lurker Wendy . Aussie.

hello.........almost time for support chat tonight and im not sure what to
do.....can anyone help....ASAP.......almost chat time...............THX PAT

Hey Lynn,
Your not far from me or a few other members here. I am over in
Alabama between Atlanta and Birmingham. We all need to try and meet
before I move back to TX. I had mine Lap also back on 9/7 and feel
like a million pennies now...I am working on the bucks!
Hugs, Linda in AL.

Does anyone get flare ups during periods of extreme stress?I have developed new
plaques in
the past few days when my eyes were opened to some things that caused me stress.
theresa

Hi,
I take C3 Curcumin Complex 400 mg cap,1 a day :$22 servings per container 60
C3 Curcumin Complex is a patented, unique composition of three bioactive,
health-promoting curcuminoids: Curcumin, Bisdemethoxy curcumin, and Demethoxy
curcumin. These are the strongest, most protective and best-researched
constituents of the herb turmeric. Multiple studies show that this
scientifically-extracted combination not only scavenges and neutralizes harmful
existing free radicals; it also prevents their formation in the first place.
These interactive antioxidants are proven to protect and strengthen vulnerable
organs such as the colon, liver and heart. In addition, these standardized
substances give the body powerful, natural tools to better control and diminish
systemic inflammation.
Also I take Inflammatone 4 a day caps ,container 120 Servings
www.rockwellnutrition.com/Inflammatone+by+Designs+For+Health+(DFH)~~983.html -
They work great ,I am not on any conventional med.
I wish you the very best of health,
Peace soudi

Here's an interesting article for our friends in the UK, about the
geographical disparity in getting biological drugs to treat PA -
http://drugguideinteraction.speedclasters.net/2008/03/20/news-arthritis-
drug-access-a-lottery/
I feel so bad for those of you who want to take biologicals, and who
are experiencing unnecessary joint destruction and pain for the lack of
them! It's not fair!!!
regards,
sherry z

Oh wow! Go Grandma Pat! LOL
I did something stupid today...was craving beets...ate 4-5 small ones...you know
the small whole canned kind...for an hour I thought I was going to die! Either I
ate too fast or they are just too much roughage for me. I was going to make
myself vomit because I felt so close to doing it anyway, but I hate
vomiting....so I manage to sit and go with it. But my God it was painful! Guess
I live and leanr what I can eat.
Mary open rny 12/3/04
Pat <patcole@...
Lynn, I am 58 had my surgery in August and within 3 weeks I was
keeping up with my grandson and within 3 months I was sliding down
the slide at the playground with him. You will be surprised at how
fast you get your energy back.
Pat in RI

David,
I have been on MTX for 18 years now and have had 2 liver biopsies. To me,
they were no big deal. I was put to sleep and woke up when it was over. I
never really had any pain. Both times, my biopsy was fine. Good luck with
yours.
Natalie

Area: Charlotte
Physician: Dr. Gary Maniloff
Recommend: Yes!
"cleinbach" <cleinbach@...

Pat, I can't wait to have more energy.
Lynn H. <
My Groups:

Hi All,
I go in monday for my first ever liver biopsy. I'm a little nervous as
I have read from others that it can be terrible, but then some have
also said it wasn't a big deal. I hope I'm in the latter camp.
After 5+ years of MTX, my rheumy and I decided it was time. Depending
on how this procedure goes and of the course the results, will
determine whether I continue MTX or not. MTX has really been a life
saver for me. I can't imagine how my life would be without it. Of
course, when I made the decision to take MTX, I knew a liver biopsy was
in my future somewhere, and I've been fortunate that my rheumy doesn't
like to push them. But 5+ years is a long time and I've ingested more
than 3x the reccomended amount that indicates a biopsy should be done.
I feel that the biopsy will very likely reveal that all is well with my
liver and I can continue with MTX. I base that on I was never a big
drinker previously and now only drink a glass a red wine on a few rare
occaisons. Ultimately if the procedure goes well and isn't too
painful, I'll continue with MTX. But even if the biopsy shows good
liver scans, but the procedure is not something I want to repeat, I'll
be looking into other options.
Wish me luck,
Stay Well,
David

Hi Fran,
I am so sorry for what you are going through.
I, too, have had the burning sensation and redness, mostly on my neck and
back, but also on my arms and legs. I thought it might be related to the
pustular psoriasis I have had in the past. It goes away after an hour or two,
so I
haven't mentioned it to my rheumatologist.
As for the peripheral neuropathy, my pcp gave me a prescription for
nortriptyline which I take at bedtime. It does seem to help. When I first
got the
prescription filled, I noticed that it was an antidepressant and I told my
doctor that I'm not depressed. He said that the drug is prescribed in much
larger doses as an antidepressant, and is used mostly today to provide relief
from
neuropathy.
I wish you well.
BeingIrish

Reminder Reminder from the Calendar of Gastric_Bypass_Family
Weekly Group Chat!!
Monday January 3, 2005
7:00 pm - 10:00 pm
This event repeats every week.
Notes:

Don in Boston,
Hi, I'm Julie from Santa Cruz CA. I was wondering how much the Tumeric
Force sells for. I bought a drink mix from my chiroprator with the
main ingredient being tumeric. She recommended it for reducing
inflammation in the body. The drink mix is 50 $ which only lasts me 2-
3 weeks if I take the recommended dose. It did seem to help, but it
is so expensive. Hopefully there is a less expensive alternative. I
am off my Enbrel right now and the methotrexate makes me really
nauseated, so I am not regular with taking it. My bone specialist
said that the Enbrel or the methotrexate both interfere with the
healing of my fracture in my foot. The fracture was caused by PA
mutalans, which destroyed a bone in my foot and caused osteoporosis
in just my right foot, which led to 2 more fractures last year. I do
not have drug coverage right now.
Julie in Santa Cruz

I tried them for over 3 months and couldn't see where they gave me any relief at
all as far as inflamation
Celeste

must be just how your doctor works lynn. i didn't have to take anyone with
me, i chose to though. wanted my folks to meet my surgeon prior to surgery and
my then fiance went to some of the pre-testing meetings too. good luck.
hugs,
laurette
4/23/04 open rny
309/290/213/160
st. vincent charity
cleveland, ohio

Dear Being Irish,
I have one other condition that occurred before I went on Arava or developed
diabetes that is linked to neuropathy as well. Its called erythromelalgia
and although its a rare disorder, it does occur frequently with cases of
RA, PA, Lupus or MS. Mine started right after my jaw surgery when the
doctors thought I was just suffering from TMJ. Basically EM causes your
skin to heat up and burn. It is also progressive most of the time and mine
has spread over the past 6 years severely. I started on one side of my
face, so it looked like I fell asleep under a sunlamp, just on one side.
Then in a few months both sides of my face were burning, then my left hand
and soon my right hand. Before long my feet started heating up every night,
but my feet were never this bad until I started Arava. Now my neck and
upper chest are starting to be affected as well. So its all so hard to
say.
There really isnt a known treatment for EM, but certain things have helped
some people. I cant get by without my household temperature at 71 degrees
now; it used to be only 74. I carry cold ice gel packs with me everywhere I
go, and I even take a pillowcase of them with me to bed every night. I
have ceiling fans in every room, and smaller personal fans aimed at my face
at all the places I sit at the most. That makes it tolerable. The only
thing that really helps is elevating my feet in my recliner. It gets much
worse with any activity at all, so again it makes walking harder or actually
doing anything harder. I hate when I cant go outside or be in the sun. We
moved to Florida to enjoy the beach and the fishing, and now Im lucky if I
can stay in the sun more than 5 minutes. Stress can trigger it, as can
alcohol, which I never drink anymore, and certain foods and sleep also
triggers a bad attack. So since it is linked to neuropathy, its hard to
tell which came first or if they are related in my case, or just two
different diseases. The combo of all these problems though makes life
pretty rough and my pain meds do help some. Xanax helps me the most since
it helps keep my stress level down. The main thing Im stressed about is
the pain Im in and the way my life has changed so much in the past 8 years
when I first started having bad PA symptoms.
I hope since you caught your neuropathy soon, you wont be or get as bad as
mine is. I keep looking for things to try and keep up on a good website
about EM, just so I know Ive heard the latest data out there. There is a
doctor at Mayos that specializes in EM, but the best he can really do is
tell you if you have it or not. Since I know I do, it seems silly to spend
all the money to go there just to hear that. If he ever comes up with a
promising treatment Ill go first thing. Since its a rare disorder, very
few doctors know it even exists and even less know where to begin to treat
this disorder.
So as bad as PA can be at times, there are things out there that are worse.
Its hard to remember that though when you are in a bad flare or cant walk.
The way to tell the difference between neuropathy and EM, as far as Ive
been told is, neuropathy doesnt respond to cold water or temperature
changes. It also doesnt as a rule cause your skin to turn bright red, even
though it can cause that burning feeling. I think the more I learn about
my health the less I want to knowlol.
Take care and thanks for your thoughts. Fran staying as cold as I can in
Florida.

That's nice to know... I read that it was higher than open heart surgery. I
like your odds better. Why do they say that I have to bring a relative with
me for this visit then?
Lynn H. <
My Groups:

Jackie - I had the opposite problem when I got my flu and pneumonia
shots last year. I don't have shoulder pain often, but I did for over
a week after those injections. Of course, they caused a huge overall
flare for me, too, which lasted about 3 weeks. Oh, well...
best,
sherry z

Amy, will he be using the regular syringe or the self-injecting pen? I
use the self-injecting pen and it is a piece of cake! Here are some
tips:
1) Take the pen out of the refrigerator for 30-40 minutes before giving
the injection. If it's too cold, it will sting more.
2) Ice the injection site down for 3-4 minutes before injecting. I
don't feel a thing from the needle at all.
3) If he has a site reaction (hives, itching, welt, etc.) then have him
take Benadryl before the next injection. That has stopped or minimized
my reaction. Sometimes I continue to take the Benadryl for a day or
two if the site shows signs of starting to develop the welt.
If he's using the pre-filled syringe, I've heard that all of the above
applies, PLUS it's important to inject v-e-r-y s-l-o-w-l-y. This makes
the overall experience much more comfortable. They say it stings like
hello if you go too fast.
No illness at all from the Humira! The only side-effect I've had is an
itchy raised hive about the size of a half-dollar at the injection
site, but Benadryl has fixed this. Of course, whatever effects he has
from the MTX will continue. But they might be able to reduce his dose
of MTX when the Humira kicks in good.
regards,
sherry z

Hi Bonnie,
I take them on a here-and-there-basis. I'm not using them for
anti-inflammation purposes, though enough tumeric might be of use. I'm taking
them for other potential benefits, especially the prospect that tumeric might
help to ward off conditions like Alzheimer's, and possibly some forms of cancer.
Should you decide on taking some, I would go straight to NewChapter's Tumeric
Force, as it is called. NewChapter is a company in Vermont, and the brand is one
touted by Dr. Andrew Weil, should you know of him (I do, and know his level of
knowledge about herbs and companies that sell them). It's good in an unregulated
market (health products like vitamins, etc.) to have someone with some authority
vouch for a specific line.
Don
in Boston

Thanks Linda...
You're right, it's not that far off. I guess that's why I'm feeling nervous
My pre-op work is THIS month.
Lynn H. my personal email lharper@...
My Groups:

Can anyone recommend a Rheumy in the Greensboro, Winston-Salem area?
Thanks.

Thank you for your responses to my inquiry about mattresses. I really
appreciate your input. Now I have another one, please.
Has anyone ever tried taking turmeric capsules? They are supposed to
be good for inflamations and skin conditions among other things.
If you tried them, please let me know whether or not they worked for
you.
Thanks very much.
Bonnie

Thanks Sonya and no, I didn't really throw up...LOL
Lynn H. my personal email lharper@...
My Groups:

Lynn
Iam soooo happy for you. I hope you didn't really go and throw
up! LOL You will be so busy all week that you won't have too much
time to worry about the whole surgery thing. Do yourself a favor and
don't bring a whole bunch of stuff to the hospital with you. I never
even opened my suitcase. If I had it to do again i would bring:
chapstick, my own pillow,toothbrush and something really loose to
wear home thats it. The hospital will supply everything you need.
sonya O'Neill
open rny 12/07/04
237/209/140

Hi All -
I was wondering if any of you had experienced anything like what I am
describing here.
I was having the worst PA shoulder flare of my life last month. I
would wake up screaming at night if I rolled onto the shoulder in my
sleep (my husband thought I was having nightmares). Prednisone and
NSAIDS were useless. My PA usually affects the areas where tendons and
ligaments attach to bones and only affects a few joints directly.
Every tendon in my rotator cuff was howling at me.
While this episode was in full swing, I went to my GP for my annual
physical and got my pneumococcal vaccine (I get all the vaccines I can
because I get sick so easily). The vaccine is IM and was given in the
deltoid muscle just below the bad shoulder.
I have never previously reacted to this vaccine, but that evening, the
injection site was swollen, red and extremely painful, and the gland
in my armpit was swollen. However - here's the strange part - ALL the
PA pain in my shoulder DISAPPEARED. The injection site reaction went
on for only a few days, but the shoulder pain has not come back. Go
figure.
All my docs are stumped, and I decided I should have been going to a
vet rather than an MD. I know that horses with tendinitis problems are
sometimes given a treatment called blistering, in which an irritant is
injected (not necessarily near the affected tendons) and the
tendinitis goes away.
So - have any of you had a similar experience or have any info as to
why the shoulder pain was "cured"? I'd love to know.
Jackie

I just got "THE CALL".... my surgery date is February 8th. I've been so
excited up til now and after I hung up the phone with the lady at the
doctors office I have this huge brick in my stomach.
This is really going to happen.
I'm REALLY gonna be thin again.
I'm really gonna be THIN again and HEALTHY.
I'm gonna... I'm GONNA... I don't know... I'm SOOOO Nervous !!!!
Excuse me... I think I'm gonna throw up...
Lynn H. my personal email lharper@...
My Groups:

Newbie here...my husband begins taking the Humira injections tomorrow.
Can someone give us an idea of what to expect from the injection? will
it be painful? Will he be ill afterward? Will he be okay to work the
next day? He will be taking the Humira along with the methotrixate his
already been taking for the past six weeks.

hi I have just recently got onto the internet at home and its enabled
me to spend more time to discover other areas of this site. I have just
discovered the database which itemises the different medications
available.
this is so helpful to me, are all these medicines available in the uk?
I am due attend the clinic on thusday and would like to go armed with
knowledge and hopefully be given a medicine that I can take whilst I
have a throat infection.
jetzsun

Unless he has a good reason why he's unwilling to sign such a letter or give you
some good reason why you should keep working despite your pain, I'd get another
doctor. Maybe he's just a coward and is afraid to assign his name to a "legal"
document. Maybe he thinks your're exaggerating. Maybe he has reason to think
things will get better. I can't read his mind but would sure push him or go
elsewhere.
Joanna Hoelscher
630-833-7361

I'd like to add my 2 cents. I totally agree with
Jackie. I'm in far better shape now than I was two
years ago. I have to force myself to exercise and yes,
it hurts, but I was so much worse off when I didn't. I
do cardio one day, and alternate with body
sculpting/toning/weight training on the other. I
almost 48 years old and stronger and leaner than I was
10 years ago, although sometimes I can barely walk
across a room thanks to my darn feet :)
warm blessings,
jane

I am so glad this group is here. I feel very alone sometimes. I am
still working because my rheumy is afraid to write me out of work.
His words "that's a legal document" and the job is killing me. Today
the pain was so bad that I was in tears and I had to take more pain
pills than I like. They kind of fog my mind and I am handling money so
I'm concerned that I will give back too much change or miscount the
deposit. My gp referred me to pain management which can't get me in
till May and that is a world away.
I guess I just needed to complain. Does anyone have some cheese to go
with my whine?? LOL
I really need to quit the job but without a dr's letter I am afraid it
will make it impossible to get disability. but on the other hand-I
know the job is causing the problem and making the PA worse. Any
suggestions as to what I should do??

Hey Connie,
I pray you'll start feeling better soon! Welcome to the loosing
side!
Hugs, Linda in AL.

Thanks for the reply. I'm going to keep taking my medicine. My x-
rays looked good, and my other Dr. said my blood work looked normal.
My RA factor was negative.
I'm going to a Dermatologist tomorrow. At the end of the month, I'm
going back to see the Dr. who referred me out to the Rheumy in the
first place. I like him and maybe he can give me some advice.
I have an appointment with a 3rd Rheumy in the middle of April. I'll
keep going to appointments until this gets figured out somehow.
Harry

Laurette, I;ll take the cold anythime! Especially in this lovely
Cleveland weather! It's awesome the little things that have
happened to my body since this surgery. I knew I'd lose the weight
but it's just mind boggling the other great things that are
happening! I'm now down 61 lbs since 10-26. I keep going for
larger sized clothes afraid that I've gained back! What a wonderful
journey1
ANna

Anna I agree with ya...lol. I've never had a being cold problem since I can
remember and now I can't seem to keep warm. I hardly even owned any sweaters
and now I'm searching for them everywhere...lol. I have been told that as we
adjust to our body weight it does get better. Take care and have a wonderful
day. Stay warm...lol
Hugs,
Laurette
4/23/04 open rny
309/290/213/160
St. Vincent Charity
Cleveland, Ohio

Doris
I do the same thing. I take 1/2 of my dosage mid afternoon and half before bed
time. It keeps me from getting too sleepy but allows me a nice night's sleep.

Every body is different - pun intended ;-) For me, running is the best
exercise, and I try to get in three four mile or longer runs a week. I
feel better for days afterwards. The endorphin surge is great.
Obviously, running isn't an option with knee damage. I have spine and
SI issues, and both are helped by running. I also do strength training
the days I don't run, as well as take the dog for walks. I honestly
think I would be bed-ridden if I didn't force myself to be active.
Jackie

Hi,
Regarding MTX dosages, both my rheumy and dermatologist had me space the MTX
over a 24 hr period to avoid the fatigue and stomach upset. Also, it helps to
take with food and plenty of water.
Doris

I had my surgery on 10-26-04 and I am always cold! I never
experienced this before. My surgeon said its a common complaint for
weight loss patients. He said its from eating very little and
burning more than you eat. All you caloric energy is going towards
losing. For the first time in years, I actually want the heat on! \
Anna
299/238/170
open rny
10-26-04

welcome home connie, get some rest and let us know how your doing ok...fred
Constance <celtic_connie@...
Hey all,
I had sugery the 30th, and came home yesterday. I still feel bad, so
pardon me, but i need to go rest.
Connie
Open RNY

* jacqsiegel:
I use the NeilMed one also. But I get sinus infections because I have no
Ig3 in my blood to go to work when the bug comes in...
I, too, have had sinus surgery and did well with it. there is nothing I
can do other than do my infusions of IGG twice a week,stay away from
large crowds and everything like the sinus irrigation.
I am on a first name basis with my ENT and immunologist...LOL we talk
all of the time.
I was born with this particular primary immune disorder and no matter
how hard I fight I will get infections. There are about 20 different
Primary immune disorders. If you are interested you can read up at
www.primaryimmune.org. It is sort of an orphan disease.
peace,
tish

Hey all,
I had sugery the 30th, and came home yesterday. I still feel bad, so
pardon me, but i need to go rest.
Connie
Open RNY

Hello
I never tried those mattresses but I did by a memory foam bed topper
from Boscov's Dept Store (you can get them on line and a lot of times
they have free shipping and they are a lot cheaper here than a lot of
other stores)it made a very big difference in my sleep I was having a
lot of hip pain and could not get comfortable and would wake up in
pain. I find since I started using the topper I sleep deeper and I
fall asleep faster. It truly has made a difference and it was a lot
cheaper than a new bed. Good luck and take care.
Linda from NJ
DX PSA 3/2006 Current meds: Remicade MXT Folic Acid Tramadol Vicodin
Levoxyl and Zonegran

No website for you but my open is a 8 inch incision from my beely
button up 8 in. kind ugly but it was for a great result.

You will be in my prayers.
Kerri Hardt <kerrisu@...
My doc thinks I have ulcers. I wasn't even aware that this could be
a side effect. Please keep me in your prayers.
Kerri
9/29/04
RNY
370/290

I have been using a foam mattress that I bought at Costco. It was $599.00
for a king size. I have never slept so well!
Barb

Oh my goodness, and I think it is helping with the pain....
What were your first symptons of the peripheral neuropathy so I can
look out for any problems that may come up..
I do know that i "itch" all over and my blood pressure has risen.
However, my rhm tells me that it is not tha Arave causing these
problems.....
The Arava has been SO much better for me than the mtx..I was just so
sick when I tried to take mtx....With the arava I have nearly NO side
effects that I can tell.. I am just worried about the effects I can't
tell about...UGH
I still feel the soreness, it just is not as intense and the intense
pain has seemed to go away for now....I hope I am not just coming out
of a flare.....
Pam
Alabama

I agree with the advice to say nothing. I worked at a small company in
which we all pretended to be friends. The company was involved in the
analysis of the health care industry, so everyone knew about PA. When
I was diagnosed, I had just experienced a 48 hour period during which
I was mostly asleep and too ill to even call the office to say I was
home in bed. They were all my "friends", but when they found out my
disappearance for 2 days was caused by PA, they changed. A couple of
colleagues told me to quit, as I obviously wouldn't be able to handle
the job. My boss (in an effort, I am guessing, to make me quit)
started sending me on protracted, difficult and frequent business
trips from coast to coast and to Europe. It was hell. And a year
later, I was fired for not doing my job properly. The only good note
was I got a decent severance package - an older woman with a
disabi